This video captures just over one month in the lives of families fighting Sanfilippo syndrome type B — a rare, terminal childhood disease. In less than 36 days, families and communities across the country raised $4.2 million by Thanksgiving, and met our $5.5 million goal by December 1, to pursue potential early access to a treatment many parents were never told existed. That milestone matters. But it is not the finish line. The process still in front of us — access decisions, timelines, regulato

Pubity on Instagram: "❤️ Sea otter pups sleep on their mom because they are born without the ability to swim or stay afloat on their own, and resting on her chest keeps them warm, dry, and safe from predators. The mother’s thick fur traps air and acts like a natural life raft, preventing the pup from drifting away while also helping regulate its body temperature until it grows strong enough to float and forage independently. (Via ViralHog) #surprise"