life with a rare disease - Rare Diseases International
life with a rare disease - Rare Diseases International
2023年2月25日
rarediseasesinternational.org
As he got older and thought about the progression of his rare disease, JJ had to make some tough decisions about what to do with his life. Watch his experience living with ASMD to raise awareness during #RareDiseaseDay | Sanofi
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As he got older and thought about the progression of his rare diseas…
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FacebookSanofi
Over 300 million people around the globe live with a rare disease—and 95% of rare diseases don’t yet have treatments. We’re addressing rare disease challenges by diving deeper into research—aiming to develop new, transformational medicines that address unmet needs for these patients. See how: https://social.jnj.com/3EWzNzz | Johnson & Johnson
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Over 300 million people around the globe live with a rare disease—an…
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FacebookJohnson & Johnson
53 reactions · 28 shares | Life with a rare disease can be challenging but you are not alone. Your unique experiences connect you to others living with rare diseases around the world, a network that can support you and unites family and loved ones, care partners and physicians. We all stand together, on Rare Disease Day and always. | Boehringer Ingelheim | Facebook
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53 reactions · 28 shares | Life with a rare disease can be challenging b…
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Rare Disease Awareness
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Rare Disease Awareness
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14 reactions | If someone is diagnosed with a condition that 200,000...
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14 reactions | If someone is diagnosed with a condition that 20…
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FacebookSanford Health
617K views · 1K reactions | "I'm not making it up." | Rare Disease on The Mighty | Facebook
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617K views · 1K reactions | "I'm not making it up." | Rare Disease on T…
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1M views · 10K reactions | 6 Unusual People Around The World Who Ar…
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Rare disease | 100,000 Genomes Project
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genomicsengland.co.uk
Many parents of kids with rare diseases fight for research — eve…
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What is a rare disease and what causes it?
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wfmynews2.com
Rare Diseases | Condition | UT Southwestern Medical Center
2019年3月21日
utswmed.org
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Rare diseases are more common than you think. On #RareDiseaseD…
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FacebookPhRMA
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Only 30 children have been diagnosed with this rare genetic di…
2019年10月23日
wfaa.com
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Huntington's disease
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www.nhs.uk
Rare Genetic Diseases
2018年4月13日
genome.gov
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A disease is defined as rare in the U.S. if it affects fewer than 200,00…
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FacebookMedical Daily
7,000 challenges: The basis and burden of rare diseases
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science.org
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My quest to cure prion disease — before it's too late
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TEDSonia Vallabh
7 Rare Diseases That Can Now Be Treated
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interestingengineering.com
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Dying patients with rare diseases struggle to get experimental thera…
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NBC NewsChristina Bennett
What rare diseases can teach us about the rest of medicine
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Rare diseases: "Recognition of a disability is still complicated"
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euronewsClaudio Rosmino
Most rare diseases: 6 rare diseases you've probably never heard of
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Understanding the genetics of Alzheimer's disease
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